Run to Parliament – All Eyes on Epilepsy

💜 WHY THIS MATTERS
Every day, Australians living with epilepsy face challenges that are often unseen, misunderstood, and under-supported.

For many families, epilepsy means living with uncertainty. Managing seizures, navigating treatments that don’t always work, and carrying the emotional, physical, and financial weight that comes with it.

Right now, there is a rare opportunity to create change.

A national Senate Inquiry into Epilepsy in Australia is underway. Decisions made from this inquiry have the potential to shape the future of support, services, and understanding across the country.

But for real change to happen, these experiences need to be seen.
Heard.
Felt.

 
🏃 THE RUN
This May, Rafa Garcia will run approximately 325km from the Sydney Opera House to Parliament House in Canberra.

A multi-day endurance run.

To carry the voices of Australians living with epilepsy directly to the heart of government.

His planned arrival is 14 May, just before submissions to the inquiry close.

This is a moment to bring attention, urgency, and visibility to a cause that affects so many.

 
🎯 WHAT THIS CAMPAIGN IS ABOUT
'All Eyes on Epilepsy' is a national awareness and advocacy campaign built around this run.

We are:

• Collecting real stories from individuals and families across Australia
• Collaborating with epilepsy organisations and advocates
• Sharing the journey through daily content and storytelling
• Amplifying the Senate Inquiry through media and public attention
• Delivering these voices to Parliament in a powerful, symbolic moment

This is about turning lived experience into collective action.

 
💸 WHAT YOUR DONATION SUPPORTS
Your donation helps make this entire project possible.

Funds will go towards:

• Transport (including support vehicle/motorhome)
• Fuel and travel costs
• Accommodation and food for the crew
• Safety and medical supplies
• Running gear and equipment
• Videography and photography to capture and share the journey
• Content production to amplify the campaign nationally
• Logistics and coordination across the multi-day run

Every dollar helps us carry these voices further.

 
📢 WHY YOUR SUPPORT MATTERS
The more people who follow this journey, the more attention this campaign receives.

The more attention it receives, the more visibility the Senate Inquiry gains.

And the more visible this issue becomes, the harder it is to ignore the needs of the epilepsy community.

This is how awareness turns into action.

 
🟣 THIS IS AN UNDERDOG MOVEMENT
This campaign is built on community.

On families who show up every day.
On people who keep going, even when it’s hard.
On stories that deserve to be heard.

With the right support, this can become something much bigger than a run.

It can become a national moment.

 
💬 HOW YOU CAN HELP
You can support this campaign by:

• Making a tax-deductible donation
• Sharing this page with your network
• Following and amplifying the journey
• Helping us bring more eyes onto epilepsy

💜 FINAL WORD
This is about making epilepsy impossible to ignore.

It’s about ensuring that when decisions are made, they are informed by real lives, not just statistics.

And it’s about showing what’s possible when a community comes together.

Thank you for being part of this.

If we are fortunate enough to raise more than is needed for this campaign, any remaining funds will go directly towards supporting families living with epilepsy through 1IN25 Foundation’s ongoing work.