Guests, friends and family of the Cottee-Schneider wedding are invited to make a donation to the Metabolic Dietary Disorders Association of Australia (MDDA) on this page.
The MDDA is a patient advocacy and support group for children, families and adults with inborn errors of the metabolism - like Dominique, who lives with PKU!
The MDDA is patient-run and volunteer-based, and relies entirely on donations to deliver patient support programs, advocacy, and promote research and clinical trials. Their work has directly improved Dominique's quality of life and we will continue to use their support services as we build a family of our own. Your donation would mean so much to us!
About MDDA
Metabolic Dietary Disorders Association Inc (MDDA) are dedicated to supporting, educating, connecting, and representing all individuals their families and carers living with Inborn Errors of protein Metabolism (IEM).
Our programs help support our goal of achieving positive health outcomes for all patients living with an IEM requiring life-long metabolic dietary management skills, resources, and support.
IEMs include PKU, all Amino Acid Disorders, Urea Cycle Disorders and Organic Acidaemias.
There are more than 13 rare IEpM representing the estimated 2,500 individuals living with an IEpM in Australia and approximately 25 babies born each year. Most IEpM are screened for via the Newborn Bloodspot Screening Program or diagnosed in metabolic crisis.
IEpM are rare genetic disorders in which the body cannot properly metabolise protein. Treatment is complex and challenging requiring severely restrictive dietary management eliminating all forms of high protein foods such as eggs, meat, dairy, nuts, legumes, protein enriched foods and most grains from the diet.
MDDA offer specifically designed programs, products and services created to help support individuals and families navigate the pathways of managing their IEpM from newborn diagnosis throughout all life stages. These programs have been created by our dedicated team of MDDA staff and executive team of volunteers.
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Fiona Bentley |
$103.50 |