Myasthenia Gravis (MG) is a chronic autoimmune neuromuscular disease that causes muscle weakness and overwhelming fatigue.
The Myasthenia Gravis Association of Queensland (MGAQ) was established in 1991 as a support group for people affected by MG. We are an Incorporated Association (IA10040) and a registered charity (CH1212) that relies heavily on the generous support of our members and donations from the public in order to continue our daily services.
MGAQ is a fully volunteer based organization with no staff or overhead structure entirely focused on helping the sufferers of MG. Support is provided in four essential ways namely Member Welfare, Advocacy, Awareness and Research Promotion.
Member Welfare - Services includes Freecall 1800 support, www & Facebook support, monthly newsletters, Brisbane & regional support committees, twice yearly expert talks distributed as DVD's to members, statewide information distribution.
Advocacy - Services at State Government level and nationally through Myasthenia Alliance Australia.
Awareness - MG is a rare condition impacting between 1 and 5 per 10,000 persons. As a result few neurologists will see more than one and GP's often never see a MG sufferer in their professional lives. Accordingly sufferers are often caught within a health system that doesn't recognize their plight. MGAQ targets greater awareness to eliminate this suffering, improve sufferers' conditions and lower community health costs through enhanced awareness.
Research Promotion to address the hurdle that rare diseases do not attract significant research funding. Over the last 3 years, MGAQ funded research activities including the first National MG Patient Survey, a National Economic Impact Study and a Benefits of Exercise in MG study. More vital work is required and planned.
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